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RFK Jr.'s New Autism Committee Issues First Proposals
A federal committee, newly reformed by Health Secretary Robert F. Kennedy Jr., proposed changes to autism diagnosis and treatment. The committee recommended that the Department of Health and Human Services clarify the need for doctors to identify and treat new health issues in autistic individuals. Clinical care for these issues is inconsistent, with symptoms often overlooked or treated inadequately. A key change suggested valuing caregiver observations of non-speaking or less verbal individuals as medical information. Training for doctors should be developed to address gastrointestinal changes and sleep disturbances commonly affecting autistic people. The Centers for Medicare and Medicaid Services should ensure comprehensive evaluation of conditions like developmental regression and allergies in autistic children. The committee highlighted that existing evidence on medical conditions in autistic individuals is not consistently integrated into clinical practice. These proposals aim to correct gaps in care, with the committee chair emphasizing the need to address the often-overlooked psychiatric and pain challenges faced by autistic people. Furthermore, the committee proposed a new term, "profound autism," to denote individuals with the highest support needs. These proposals were discussed at the committee's first meeting since its restructuring, potentially leading to revisions.